Some people refer to me as strong, others say that I am a warrior and a fighter, others say am a champion, resilient. All these are names given to me, so I don’t know if they are compliments or critics. However I take them all knowing that I am all these things that people call me. Wait a minute, what is the real name that … Continue reading ONCE A WAIRRIOR, ALWAYS A WAIRRIORMY LIFE STORY LIVING WITH DISABILITY. Story shared by Sharon Aluoch, from Kenya 🇰🇪
I am a mother with two (2) daughters, aged 13 and 17 years, respectively. Both my daughters have epilepsy.AVAILABILITY OF ANTI-EPILEPTIC MEDICATIONMy daughters are on the same prescription of carbamazepine and lamotrigine. In some cases, I can get carbamazepine free of charge at the local government health center, but they never have lamotrigine. Lamotrigine is expensive. I need $80US every month ($40US per child) to … Continue reading LIVING WITH EPILEPSY A Story shared by a mother based in Zimbabwe 🇿🇼
My name’s Chantal Kanyabutembo SG of the EAA, and co-founder of Geco Rwanda, a middle-aged women victim of epilepsy(16 years) since the age of 11 up to 26 years! We do celebrate the stripes week to commemorate ourselves as warriors of our Families and global ambassadors! This disease affected my life when I started secondary school. Most of my friends may not understand why I … Continue reading Chantal Kanyabutembo (Rwanda): My courage brought me to a point where I founded GECO Rwanda!
In 1990 on 23rd of January, a beautiful baby girl was born in Mission Hospital in Migori District (now Migori County). As usual the parents and relatives were very happy and grateful to God, but the mum’s joy exceeded all this. The baby grew up to be a very jovial and healthy girl until the age of one and half years when something strange started happening … Continue reading MY JOURNEY WITH EPILEPSY by Vallent Rachel, Founder and Executive Director of Geno Epilepsy Center, Kenya
Hello , I’m Ojijo Mbai Odhiambo from Kenya.I was diagnosed with epilepsy when I was 6months old due to loss of oxygen during birth. It has been a tough journey until now; I’m 25years old. I had frequent seizures when i was young and didn’t know what they were. Thanks to my parents for their support for where I am today. I could have frequent … Continue reading Ojijo Mbai Odhiambo’s Epilepsy Journey
My name is Aubrey Chiumia, i am 35 years old, i was born in a family of 3 of which i am second born, i was born and raised in Malawi. I am an epilepsy warrior, i started experiencing seizures at the age of 8, then i was hospitalized at St Johns Mission hospital for two weeks with Malaria after i had my first seizure, by … Continue reading I started experiencing seizures when i was 8 years old!
For the first time ever, organizations in the African continent are going to commemorate Stripes Week/Africa Epilepsy Week in September from the 20th-24th. Stripes Week is an initiative that has been launched by Epilepsy Alliance Africa with the aim of raising Epilepsy Awareness. This years theme is Together we will Defeat Epilepsy! During Stripes Week people all over Africa and beyond are encouraged to spread … Continue reading Stripes Week/Africa Epilepsy Week