Category: Health, Epilepsy & Rehabilitation
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Chantal Kanyabutembo (Rwanda): My courage brought me to a point where I founded GECO Rwanda!
By Chantal Kanyabutembo, Co-Founder, GECO Rwanda. Lived with epilepsy for 16 years, founded GECO Rwanda, influenced the Ministry of Health to provide free anti-epileptic drugs nationally, and built cooperatives for 350 members.
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MY JOURNEY WITH EPILEPSY by Vallent Rachel, Founder and Executive Director of Geno Epilepsy Center, Kenya
From diagnosis as a teenager, to facing stigma and employment discrimination, to founding a CBO in Migori County and establishing the county’s first monthly epilepsy clinic.
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Ojijo Mbai Odhiambo’s Epilepsy Journey
Diagnosed with epilepsy at 6 months old due to loss of oxygen during birth. Now 25, pursuing higher education despite seizures, medication side effects, and the loss of his father.
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I started experiencing seizures when i was 8 years old!
By Aubrey Chiumia, Epilepsy Warrior, Malawi. Started experiencing seizures at age 8. His family thought he was bewitched due to lack of information about epilepsy. Now runs a successful shop and advocates for the rights of people with epilepsy.
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Stripes Week/Africa Epilepsy Week
By Samuel Chigamba, Epilepsy Warriors Foundation, Malawi. Epilepsy Alliance Africa launches Africa Epilepsy Week with the theme ‘Together we will Defeat Epilepsy.’ Stories collected from epilepsy warriors across the continent.
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Interview with Pamela, a single mother of a child with disability from Lilongwe, Malawi, Africa.
By Msenga Mulungu, Program Manager, Sandi Thandiza, Malawi. An interview with Pamela Chipeka, a 29-year-old single mother in Lilongwe raising 4-year-old Irenaeus who has cerebral palsy and epilepsy — the challenges of finding housing, employment, and support.
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Parents travel over 200 Km to access services for their Children with Mobility Challenges.
By Msenga Mulungu, Program Manager, Sandi Thandiza, Malawi. Parents from Karonga district describe travelling over 200 kilometres with their children with mobility challenges to reach the nearest service provider.
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