Category: Personal Stories & Lived Experience
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The Power of Inclusive Infrastructure: A visually Impaired Traveler’s Perspective
By Aishwarya Pillai, Rehabilitation Counselor & Blind Filmmaker, India. A blind accessibility advocate documents her solo travels across Indian cities and to Dubai — comparing the stark difference between accessible and inaccessible infrastructure.
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Chantal Kanyabutembo (Rwanda): My courage brought me to a point where I founded GECO Rwanda!
By Chantal Kanyabutembo, Co-Founder, GECO Rwanda. Lived with epilepsy for 16 years, founded GECO Rwanda, influenced the Ministry of Health to provide free anti-epileptic drugs nationally, and built cooperatives for 350 members.
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MY JOURNEY WITH EPILEPSY by Vallent Rachel, Founder and Executive Director of Geno Epilepsy Center, Kenya
From diagnosis as a teenager, to facing stigma and employment discrimination, to founding a CBO in Migori County and establishing the county’s first monthly epilepsy clinic.
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Ojijo Mbai Odhiambo’s Epilepsy Journey
Diagnosed with epilepsy at 6 months old due to loss of oxygen during birth. Now 25, pursuing higher education despite seizures, medication side effects, and the loss of his father.
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I started experiencing seizures when i was 8 years old!
By Aubrey Chiumia, Epilepsy Warrior, Malawi. Started experiencing seizures at age 8. His family thought he was bewitched due to lack of information about epilepsy. Now runs a successful shop and advocates for the rights of people with epilepsy.
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Accessible Examinations in higher education
By Preethi Srinivasan, Disability Rights Activist, India. Paralysed below the neck, she shares her fight for a PhD at IIT Madras — battling inaccessible exam centres, finding a scribe 48 hours before the test, and passing UGC-NET despite being made to write in a storage room.
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