Category: Personal Stories & Lived Experience
-

The Power of Inclusive Infrastructure: A visually Impaired Traveler’s Perspective
By Aishwarya Pillai, Rehabilitation Counselor & Blind Filmmaker, India. A blind accessibility advocate documents her solo travels across Indian cities and to Dubai — comparing the stark difference between accessible and inaccessible infrastructure.
-
Train Journey of a Visually Impaired person: A narrative of my experience traveling alone
By Suman Gayen, Disability Rights Activist, India. A totally blind masters student documents his 40-hour solo train journey from Bangalore to West Bengal — a practical guide for visually impaired travellers and a statement about independence.
-
Epilepsy is not a hindrance
Shared by Samuel Chigamba, Epilepsy Warriors Foundation, Malawi. A personal account of living with epilepsy — the challenges, the stigma, and the resilience.
-
ONCE A WAIRRIOR, ALWAYS A WAIRRIORMY LIFE STORY LIVING WITH DISABILITY. Story shared by Sharon Aluoch, from Kenya 🇰🇪
Living with paralysis and epilepsy since childhood — facing bullying, stigma, and discrimination, yet completing her studies and pursuing Counseling Psychology. Once a warrior, always a warrior.
-
LIVING WITH EPILEPSY A Story shared by a mother based in Zimbabwe 🇿🇼
Shared by Samuel Chigamba, Epilepsy Warriors Foundation, Malawi. The challenges of raising two daughters with epilepsy — the struggle to access medication, the financial burden, and managing seizures in a health system with limited resources.
-

Chantal Kanyabutembo (Rwanda): My courage brought me to a point where I founded GECO Rwanda!
By Chantal Kanyabutembo, Co-Founder, GECO Rwanda. Lived with epilepsy for 16 years, founded GECO Rwanda, influenced the Ministry of Health to provide free anti-epileptic drugs nationally, and built cooperatives for 350 members.
-

MY JOURNEY WITH EPILEPSY by Vallent Rachel, Founder and Executive Director of Geno Epilepsy Center, Kenya
From diagnosis as a teenager, to facing stigma and employment discrimination, to founding a CBO in Migori County and establishing the county’s first monthly epilepsy clinic.
-

Ojijo Mbai Odhiambo’s Epilepsy Journey
Diagnosed with epilepsy at 6 months old due to loss of oxygen during birth. Now 25, pursuing higher education despite seizures, medication side effects, and the loss of his father.
-

I started experiencing seizures when i was 8 years old!
By Aubrey Chiumia, Epilepsy Warrior, Malawi. Started experiencing seizures at age 8. His family thought he was bewitched due to lack of information about epilepsy. Now runs a successful shop and advocates for the rights of people with epilepsy.
-

Accessible Examinations in higher education
By Preethi Srinivasan, Disability Rights Activist, India. Paralysed below the neck, she shares her fight for a PhD at IIT Madras — battling inaccessible exam centres, finding a scribe 48 hours before the test, and passing UGC-NET despite being made to write in a storage room.
You must be logged in to post a comment.